LAUGH: Designing to enhance positive emotion for people living with dementia

Dementia comprises a number of degenerative neurological diseases. It is a complex condition and each person’s experience and symptoms are different. There is a growing awareness of the need for well-designed products and services to assist with dementia care and to enhance wellbeing. This paper presents research investigating the design of playful objects for people with late stage dementia. The investigation described is a preliminary stage in the LAUGH (Ludic Artefacts Using Gesture and Haptics) project; an AHRC funded international, interdisciplinary design research project. People living with dementia, informal and professional carers, health professionals, art therapists, charity representatives, arts practitioners and designers are informing the research through a series of expert group participatory workshops and case study interviews. Observation, discussion, video, photography and investigation. Findings presented in this paper focus on the importance of emotional memory and emotional expression in the care of people with late stage dementia; the value of sensory triggers and props to stimulate emotional remembering; and the importance of designing to promote high quality social connections

In the moment: designing for late stage dementia

This paper presents international multidisciplinary design research to support the wellbeing of people living with dementia. The LAUGH project aims to develop playful artefacts that will contribute to non-pharmacological personalised approaches to caring for people living with late stage dementia in residential care. This paper presents the context for this research and explains the initial stages of the work currently in progress. An inclusive participatory methodology is described in which key experts including: health professionals, technologists, materials scientists and carers of people living with dementia are informing the development of design concepts. A positive design approach in which designing for pleasure, personal significance and virtue underpin the work. The initial stages of the research have identified the significance of: playfulness, sensory stimulation, hand use and emotional memory. This paper contends that designs should aim to promote ‘in the moment’ living in order to support subjective wellbeing of people living with late stage dementia

Designing for wellbeing in late stage dementia

This paper presents research that is developing new ways of supporting the wellbeing of people with late stage dementia through the development of playful objects. The LAUGH project is an international AHRC funded design research project that is using qualitative and participatory approaches to inform innovative concepts for new playful artefacts to stimulate fun, joy and in the moment pleasure for people living with dementia. The research is partnered by Gwalia Cyf and supported by Age Cymru and Alzheimer’s Society, including people living with dementia from their Service User Review Panels (SURP). Data presented is informed by three pre-design development workshops in which a multidisciplinary group of experts in the fields of dementia care and design have contributed their professional experience. This paper specifically focuses on data from the third of these workshops exploring procedural memory in relation to hand-use and craft making. This paper contends that hand-use, gesture and haptic sensibilities can provide access to procedural and emotional memories, which are retained even into the late stages of the disease. Craft and making activities learned in earlier life, provide rhythmic patterns of hand activity that can enhance wellbeing by supporting in the moment sensory experience, competency and reaffirmation of personhood. Playful activities provide a person with dementia freedom to explore, learn and have positive experiences even when cognitive function and memory recall is severely impaired. Future planned workshops will see the iterative development of prototype designs and their evaluation in ‘live labs’ with people living with late stage dementia

Design for dementia: Making spaces for uncertainty

This paper presents research undertaken as part of the LAUGH project to explore design processes and design of hand held playful objects for people living with advanced dementia. A series of six co-design workshops were carried out with experts in relationto dementia and design. This paper reports on a workshop with designers that enabled them to draw on their experience and training in design, provided creative opportunities to reflect on their personal values, and challenged preconceptions about designing for dementia care

Enriching everyday lived experiences in dementia care

Research in HCI is increasingly investigating the role of technology in supporting meaningful and social activities to enhance the lived experiences of people with dementia. However, to further enrich the daily experiences in care, more insight is needed into how technology can directly promote social participation and pleasurable experiences in everyday care situations. This paper discusses the deployment of VITA and SAM: two research products that address the social and emotional needs of residents in day-to-day dementia care. We report how both products offered aesthetic and sensory enrichment, created new experiences in the everyday, and were integrated into the care environment. Furthermore, we identify implications for design to provide: 1) aesthetics in care, 2) authentic experiences, 3) reinforcing everyday life, and 4) community-driven use in practice. We contribute to existing research by demonstrating how technology for dementia care can transcend instrumental use and culminate in warm-felt everyday experiences

EmbodiMap VR. A tangible and immersive body-mapping experience.

EmbodiMap is a creative research and therapeutic tool that enables users to connect with and explore how thoughts, sensationsand emotions are experienced in the body. It extends existing body-mapping research and protocols by facilitating a tangible immersive experience

Memory Loss and Scenic Experience: An Arts Based Investigation

In our research, two groups of people living with memory loss due to mid-stage dementia were invited to view a film installation, centred on the experience of a woman with a brain lesion and dense amnesia. The groups, recruited from day-care and support settings, were living at home. One included informal care-givers. After the film, each participated in a visual matrix: A group-based method of eliciting image-led and affective associations in response to aesthetic stimuli to support shared and distributed memory. We hypothesised that the associative process of the visual matrix would support meaningful engagement for participants with dementia. We discuss the participation and self-reflection facilitated through the method in terms of social scaffolding, attending to differences between the groups, presence of care-givers and visual matrix setting. We consider the conditions in which scenic experience, replete with embodied memory traces is expressed in a visual matrix by people with impaired recall, enabling them to engage with a complex artwork. This provides insight into how the embodied, subjective experience of people living with memory loss can be communicated. Implications for enrichment programmes, social activities and communication in group care settings are considered